Collaborative Post
When our loved ones are near the end of their lives, it’s up to us to make things as comfortable as possible and to deliver the best quality of life that can be achieved under the circumstances. It’s a difficult time for all concerned, but hardest of all for the patient, who is accustomed to independence and who hates the idea of being a burden. Each situation is unique, and there are limits to what we can do. Use these tips to guide you when providing end-of-life care to those closest to you.
Know When You Can’t Cope
Much as we are willing to give our all to the people we care about, there are times when we simply can’t cope with their needs. When special care that we can’t provide is needed, it’s time to seek out a hospice. Places like Hospice House, Oklahoma illustrate a situation in which care is given in a home-like environment rather than an institutional one. Although it’s not really home, efforts are made to make the transition as easy as possible. With medical personnel on site, there’s assurance that medical and physical needs will be attended to promptly.
Home Care When Possible
When people are simply frail and in need of help, home care remains the best quality care available. If family members or trained carers can be available, individual attention is guaranteed. However, this comes at a price that is too high for many people. Apart from the cost of hiring assistants, family based care may make it impossible for those responsible to work and earn a living. In addition, medical needs may exceed the resources and training available. However, if it is possible to cope with a home care situation, it is the most comfortable environment for the patient.
Positive Interactions and Activities
It’s important to remember that even patients who struggle with communication are often still aware of their situation. Always speak to them as if they are fully present and explain any tasks that you are performing on their behalf. Show affection and understanding at all times.
Provide diversion in line with their physical capabilities. If they are able to walk, even if only with assistance, provide opportunities for gentle exercise. If not, consider the feasibility of wheelchair outings. Read aloud, or select films and documentaries that may interest them. If there is anything they can do that will make them feel useful, let them perform these tasks, even if it means they have to be redone afterwards.
Don’t Push Yourself Too Hard
End-of-life care can mean 24/7 work. For any carer or family member, this can be unsustainable. Even when you have help, you might find that you’re reaching the end of your tether. An emotionally and physically exhausted carer is more likely to make mistakes and is less able to provide the positive and loving atmosphere that eases a loved one through the final phase of their life.
You may feel “selfish” when you find yourself needing to take a few steps back from the situation, but allowing yourself to reach burnout will not be of benefit to anyone, least of all the person for whom you are exerting all this effort. Gain a little respite by reaching out to people who will be willing to help you, and if home care becomes unmanageable, explore alternatives with an eye to the wellbeing of your patient.